Advocacy for children in hospital




Down Syndrome Ireland has been offered 20 places for our members to the launch of the Network of Childhood Illness Groups seminar entitled ‘Working together to improve child health services and experiences’.

The half day seminar takes place on Tuesday 28th January 2020 and is the official launch of the Network of Childhood Illness Groups – established to provide a stronger, unified voice in advocating for the rights of all children, their families and carers in a health care setting.

The Network of Childhood Illness Groups will present attendees with the preliminary results of the research into the non-medical costs associated with having a child in hospital. (This research survey commenced in September 2019 and was open until 12th November with over 300 individuals having completed the survey).

It is their intention to commence a campaign to address some of the key findings and we will value your input on the day. Down Syndrome Ireland fully supports this campaign and would like our members involved if possible.

As DSI has 20 places on this seminar, we suggest that anyone who is interested and available on 28th January email putting “Childhood Illness Advocacy seminar” in the subject line. We will review in January when the office reopens, and if more than 20 people are interested we will draw names.

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