Governance and Annual Reports

Down Syndrome Ireland is committed to establishing and maintaining the highest standards of Governance. We believe that it is essential to set and demonstrate high levels of transparency and accountability to all our stakeholders, supporters and funders.

We have worked on behalf of people with Down syndrome and their families since 1971. We have built up and maintained a high level of public trust that we value and do not take for granted.

Down Syndrome Ireland works with more than 3,500 people with Down syndrome and their families each year. We are an organisation with an annual expenditure of €3.1million (2015).

As well as a national office, we are made up of 26 local branches which provide a wide range of vital services including education, support and research that enhance the lives of thousands of children and adults with Down syndrome. Our branch network is primarily run on a voluntary basis by our members and offer a range of activities, outings, services and supports throughout the country.

Funding and Finances

Less than 8% of our overall income comes from Grants and State funding. To continue providing our essential services, we need to raise the remaining income through fundraising efforts.

Down Syndrome Ireland publishes its financial accounts annually. They are prepared in accordance with the most up to date accounting standards, FRS 102 (2015) and with UK and Irish GAAP (Generally Accepted Accounting Principles) (2014).

We also comply with the requirements set down by the Charities Regulatory Authority, the Governance Code of Good Practice for Community, Voluntary and Charitable Organisations and the Statement of Guiding Principles for Fundraising created by the organisation Irish Charities Tax Reform, ICTR.


The Board of Directors have appointed O’Hare Donohoe, Unit 7, Scurlockstown Business Park, Dublin Road, Trim, Co. Meath, as auditors of Down Syndrome Ireland for 2015.

Down Syndrome Ireland’s Board Members and the Chairman of the Board are volunteer members of the organisation and receive no remuneration. They donate freely of their time, skills and experience.

Everyone in Down Syndrome Ireland is 100% committed and passionate about the work they do on behalf of people with Down syndrome and their families.

Please find below our Annual Reports: