“… more than medical” is about reality, and providing balanced, complete information for new families.
Down Syndrome Ireland celebrated World Down Syndrome Day 2019 by launching new resources which challenge outdated ideas about Down syndrome and instead provide an insight into the realities of family life with a baby, child, teenager or adult with Down syndrome in Ireland today.
The booklet “… more than medical” and a corresponding video – Having a Child with Down syndrome – is aimed at supporting new parents and families. They were launched at an event in House, Dublin and parents and their children, as well as adults with Down syndrome from around the country, attended the event as part of our WDSD celebrations.
Mary Doherty, President of Down Syndrome Ireland said: “As many parents of children with Down syndrome know, there is an abundance of medical information about the condition but not a lot which provides real insight into the realities of having a child with Down syndrome, and we wanted to change that.”
“… more than medical” will be a resource for parents with a pre or postnatal diagnosis of Down syndrome for their baby. It will also be an essential tool for professionals and healthcare workers to ensure complete and balanced information is provided to all parents.
We joined forces with Rebekah Docherty and Michelle Clark from Lose the Label CIC to develop the booklet, which includes a combination of experiences from family and adult members from around the country.
‘…more than medical’ will be distributed free-of-charge to all of our 25 branches, maternity and children’s hospitals across the country and HSE Early Intervention Teams.
Check out the amazing snaps from the launch event below.