“… more than medical” will be a resource for parents with a pre or postnatal diagnosis of Down syndrome for their baby and an essential tool for professionals and healthcare workers to ensure complete and balanced information is provided to all parents.
We are able to do this thanks to a very generous donation by Ian and Heather Fleming in memory of Ian’s sister Anne, who had Down syndrome, and we are so grateful to them for their support.
The booklet will be distributed free-of-charge to:
- Our branches
- Maternity Hospitals
- HSE Early Intervention Teams
- Down Syndrome Ireland’s Clinic in Tallaght Hospital, Dublin
- Down Syndrome Ireland delivers training to medical professionals on how best to inform parents – we will distribute copies to medical professionals at these sessions.
The booklet will also be available to view and download here once published.
We ask you to share your personal experiences under the following headings in 350 words or less. Should your contribution be selected for inclusion in the resource, we will advise and request 2-3 high quality images be provided.
- Initial thoughts/feelings at point of diagnosis
- The reality
- The challenges
- The medical
- The highlights
- Family Life
Please share you answers under the following headings in 350 words or less. If your contribution is selected you will need to send 2 – 3 images with your contribution.
- What is your name?
- How old are you?
- Where are you from?
- What is the most important thing in the world to you?
- Tell me about your school
- What was the best thing in school?
- What was the worst thing in school?
- Tell me about your family
- Tell me about when you were a child
- Tell me about your life now
- Tell me about things you like doing
- Do you have a job?
- Would you like a job?
- What kind of job would you like?’
- Tell me about your job
- Do you get paid?
- Do you like your job?
- What days do you work?
‘Lose the Label is a grass roots initiative challenging perceptions about life with Down syndrome.
‘We begin by advocating for a more positive language when describing children and adults living with Down syndrome.