Informing families

Information, help and advice for professionals informing families of a diagnosis of Down syndrome

In this section you will find information on how to access best practice guidelines for communicating with families and details about training that Down Syndrome Ireland offers medical professionals.

  • Training

    The way in which parents are first told that their son or daughter has a disability can stay with them for the rest of their lives.  We recognise that this can be a difficult task for medical professionals and it is one that they can struggle with.

    Down Syndrome Ireland offers training, advice and support to medical professionals in how to deliver news in an appropriate manner

    The training is carried out by our Clinical Research Nurse Fiona McGrane. She is the only nurse in Ireland who specialises in Down syndrome.

    Fiona currently provides this training to all Trinity College medical graduates on their paediatric rotation and to student midwives.

    Please contact us on 01 4266500 or email info@downsyndrome.ie if you would like more information or would like to schedule a training session.

  • Informing families

    The Informing Families website provides information for parents and professionals at the time of a child’s diagnosis with a physical, sensory or intellectual disability or when there are concerns about a possible diagnosis.

    On www.informingfamilies.ie, professionals can access best practice guidelines for communicating with families, and practical tools and materials to help implement these recommendations.

    The website also includes a one-hour e-learning programme to support professionals in their practice when communicating sensitive or difficult news to families.

    Down Syndrome Ireland consulted in the development of the resources for this site.