Privacy Statement

We at Down Syndrome Ireland respect your right to privacy. The purpose of this Privacy Statement is to outline how we deal with any personal data you provide to us while visiting this website. This Statement applies only to, the website of Down Syndrome Ireland.

Down Syndrome Ireland will store any personal information collected from this website where you provide information to us to request a service, book an event, make a donation or purchase, become a volunteer or provide information as a member/member’s family. Personal data may be stored for future communication where the website user provides permission to do so. Information will not be supplied to any third party for marketing or communication purposes.  We may share data with our customer relations system partner for the purpose of developing and maintaining our database only.  We will also share data with third party service providers where you have requested us to do so for an event, activity or service.

Type of information collected

The information collected on this site includes:

Non-personal data:

A website user’s IP address is automatically logged by our web server. IP addresses are used to observe users’ interests in this website (number of visits, etc).

Cookies, which are very small text files saved to your computer, are used to track user navigation around a website. At, cookies may be used to store information on which features have been seen by a user. They are not cross-referenced with any other information such that an individual person could be identified. We use this non-personal data in an aggregate form to get a better understanding of where our visitors come from and to help us better design and organise our website.

Personal data

E-mail addresses and/or other contact details which users voluntarily provide in order to:

– Receive information from Down Syndrome Ireland e.g. e-newsletter;
– Process membership/ donations/ purchases;
– Request information from Down Syndrome Ireland.

If you click on any of the email links on the site or use the contact or registration forms, you will be submitting your email address to us. Information submitted to us by email may be retained.

If you register for a conference, fundraising event, request information, or provide feedback, you will be asked to provide Personal Data such as your name, postal address, e-mail address.

If you wish to make an online donation, you must provide us with your name, postal address, email-address, and the amount of your donation. We may use this Personal Data to issue you with an official Thank You letter and/or receipt. We may also use the information to update you on occasion about how your donation is helping the work of Down Syndrome Ireland and inform you about future events, unless you indicate you do not wish to receive such communications. If you choose not to opt-in, your donation will be considered an anonymous donation, and you will not be contacted by us.

When making a donation or purchase, your credit or debit card payment details will be securely managed by our card processor who will perform the transaction on our behalf. At no time will your card details be stored.


Down Syndrome Ireland does not use or disclose information about your individual visits to our website or other information that you voluntarily give us, such as your name, address, e-mail address or telephone number, to any third parties except for the use of completing a donation or transaction that you initiate or developing and maintaining our customer relationship system.

We may provide non-personal data to third parties in aggregate form. For example, we might inform third parties regarding the number of unique users who visit our website, the amount of visits to the site per month or the activities that visitors to our website engage in while on our website. We will not disclose your personal data to third parties.

Right of Access

You have the right to access your information held by Down Syndrome Ireland and where necessary, to have it amended or deleted. To find out what personal data we hold on you or to have your data updated or removed please contact us at

Links to other websites

This website contains links to external websites. Links are all clearly visible, differing from the regular text on the website. This privacy statement does not apply to these sites nor are we responsible for the content and practices of any of these websites.


Personal data is held on secure servers. While no data transmission over the Internet can be guaranteed to be 100% secure, Down Syndrome Ireland has taken all reasonable steps to protect your personal data.