DSI’S ON-GOING LOBBYING CAMPAIGNS FEATURE IN MEDIA FOR WORLD DOWN SYNDROME DAY 2018

                 Our on-going campaigns focusing on the importance of speech and language and occupational therapy for children and adults with Down syndrome received some great press coverage around World Down Syndrome Day 2018.The articles … Continue reading

DSI receives great television coverage as we celebrate World Down Syndrome Day 2018

World Down Syndrome Day 2018 was a busy time for us in the media! We received some great TV coverage including an appearance on The Late Late Show for our National Advisory Council, a segment on the 9 O’Clock national … Continue reading

Annual Leitrim Ladies Lunch another big success for 2018!

Every year it’s a hit and 2018 was no different, with over 350 attendees to the fourth Leitrim Ladies Lunch in aid of Leitrim-West Cavan Branch of Down Syndrome this event is clearly going from strength to strength. World Down … Continue reading

Minister Harris launches Public Consultation on Geographical Alignment of Community Healthcare Organisations and Hospital Groups

Minister for Health Simon Harris has today (Thursday, 29th March) launched a Public Consultation on the Geographical Alignment of Community Healthcare Organisations (CHOs) and Hospital Groups. The consultation, which is part of the implementation of the Sláintecare Report, is seeking … Continue reading

DSI announces its first Camino de Santiago fundraiser!

Down Syndrome Ireland is delighted to announce its first Camino Walk to raise important and much-needed funds. This September (23rd – 30th) we are planning, an unforgettable adventure by walking part of the Camino de Santiago in Northern Spain. So … Continue reading

Our National Advisory Council members were guests on RTE 1’s The Late Late Show

On Friday 16th March our National Advisory Council members were invited guests on The Late Late Show with presenter Ryan Tubridy. The group were there to talk about their unique Photography Exhibition ‘Who Am I?’ which is currently running in … Continue reading

DSI launches photography exhibition celebrating adult community for World Down Syndrome Day 2018

Down Syndrome Ireland is celebrating World Down Syndrome Day (Wednesday, March 21) today by launching a unique photography exhibition aimed at challenging perceptions of Down syndrome in society. The exhibition will be launched this evening (Wednesday) in the Powerscourt Centre … Continue reading

Phoenix Park turns Purple once again for World Down Syndrome Day

The Purple Run proudly supported by MACE will be fun for all the family on March 24th Down Syndrome Ireland (DSI), with the support of Today FM’s Matt Cooper and double European Cross Country champion Fionnuala McCormack, are encouraging people … Continue reading

DSI welcomes Dáil debate on the ratification of the UNCRPD

We welcome the important Dáil debate which will take place this evening (7th March, 2018) on Ireland’s ratification of the UN Convention on the Rights of Persons with Disabilities (UNCRPD). While we fully support Ireland’s long overdue ratification of the … Continue reading

DSI CELEBRATES WORLD DOWN SYNDROME DAY WITH UNIQUE PHOTOGRAPHY EXHIBITION

We are delighted to announce that we are launching a unique photography exhibition celebrating the diverse interests, skills and aspirations of people with Down syndrome called ‘Who Am I?’ as part of our World Down Syndrome Day celebrations. The exhibition … Continue reading

SUCCESSFUL EDUCATION CONFERENCES HOSTED IN GALWAY

We recently welcomed over 80 parents and teachers to our Education Seminars for Preschool and Primary school children and also to the DSI Transition to Second Level Conference in Galway. The feedback from the attendees was excellent so we trust … Continue reading

PURPLE RUN 2018

               At long last Spring is in the air! We really hope that you will join us this year for our third annual Purple Run on Saturday, March 24th at 11am in the Phoenix Park. The … Continue reading

Government to ratify the UN Convention of the Rights of Persons with Disabilities (UNCRPD)

The Government will ratify the UN Convention of the Rights of Persons with Disabilities (CPRD), Minister of State for disability, Finian McGrath, has this week announced. Ratification of the United Nations Convention on the Rights of Persons with a Disability … Continue reading

Additional funding for the Access and Inclusion Model announced

On Friday 12th of January, Minister for Children and Youth Affairs Katherine Zappone announced additional funding to develop AIM Inclusive Play, as part of the supports offered through the Access and Inclusion (AIM) Model. AIM Inclusive Play will be a … Continue reading

Waterford Social Farming Initiative enhancing lives

Last Thursday, January 11th, Minister Finian McGrath TD visited the fantastic Ballinamona Social Farm to meet three members of our Waterford and South Kilkenny branch, who have just completed a 12 week Social Farming Programme; a partnership between Waterford Leader Partnership CLG and DSI … Continue reading

Our campaign to reverse changes to the ECCE scheme continues (incl. updates)

On Friday 24th November at 4.00pm, the Department of Children & Youth Affairs announced significant changes to the overage exemptions under the ECCE Scheme. The changes were announced without any communication or consultation with any of the key stakeholders, especially … Continue reading

Our concerns about changes to ECCE provision (Dec, 2017) and Update on our campaign (January 16th 2018)

– Families want to avail of free preschool education provision for their child, but parents who have contacted us have expressed dismay at the lack of flexibility in the new system. – There are sound reasons for supporting a flexible … Continue reading

CEO Gary Owens meets Finian McGrath TD, Minister for State with Responsiblity for Disability Issues

We were very pleased to formally meet Finian McGrath TD, Minister of State with Responsibility for Disability Issues this week to highlight the issues of our members and the priorities for Down Syndrome Ireland. The areas that our CEO Gary Owens … Continue reading

Our Kildare branch is hosting a ‘New Parent Day’ in February 2018

Our Kildare Branch is hosting a ‘New Parent Day’ for parents of children under 3 years old. Date:   Saturday 17th February 2017 Time:   9.30am – 4.30pm Venue: The Westgrove Hotel, Clane, Co. Kildare The workshop will be led by May … Continue reading

‘Let US Shine’ set to sparkle on November 26th!

The stars are coming out on Sunday, November 26th at our up-coming Fashion Show & Variety Peformances: Let US Shine! We are so excited to present to you a diverse array of sensational singing, delightful dancing, melodic music and improvised … Continue reading

We are looking for contributors for a new booklet about the realities of family life!

We are delighted to join forces with Rebekah Docherty and Michelle Clark from Lose the Label CIC – a grass roots initiative challenging perceptions about life with Down syndrome – to develop a collaborative booklet  “… more than medical” providing insight into the … Continue reading

NESTLÉ SHOP WARS IS WON, BUT WHO WAS VICTORIOUS?

Huge congratulations to the Nestlé Ireland Staff who took part in our recent SHOP WARS challenge on Friday 13th October at both our GPO and Kimmage shops and raised an amazing €5,845 on our behalf! 30 Nestlé Ireland staff worked … Continue reading

CALL FOR RESEARCH PARTICIPANTS! October 2017

CAN YOU HELP US BY TAKING PART IN SOME IMPORTANT RESEARCH? Do standard assessments underestimate your child’s ability? Would you like something better? We are working with a researcher based in University College Cork who is trying to find out … Continue reading

Invitation to Arthritis Ireland’s Annual Research Lecture 2017

You are cordially invited to a special lecture by Arthritis Ireland’s principal researchers, Prof. Gerry Wilson, Prof. Ursula Fearon and Dr Charlene Foley on their “Plans for life-changing research”. The past 12 months have seen Arthritis Ireland’s quest to find … Continue reading

DSI announced as grantee of ‘Pyjama Day Fund’ from Early Childhood Ireland

Down Syndrome Ireland is delighted to have been chosen as one of five grant recipients of the 2017 Pyjama Day Fund from Early Childhood Ireland. Being one of the recipients of the Pyjama Day Fund 2017 will make an enormous difference … Continue reading

Wallace wows Wyeth for Down Syndrome Ireland

The former Munster and Ireland rugby hero David Wallace made a special visit to Askeaton where he officially launched the Wyeth Nutritionals Ireland and Nestlé Ireland’s charity partnership with Down Syndrome Ireland which aims to €70,000 over two years. The … Continue reading

DSI pilots innovative new education programme through our Galway branch

Down Syndrome Ireland has piloted an innovative new education programme through our Galway branch to support parents’ choice to send their teenagers to mainstream secondary education. Thanks to the project – called the DSI Promotion of Education and Inclusion Project … Continue reading

CONFERENCE: Supporting Children with Down syndrome in Primary School

We are delighted to announce our upcoming Education Conferences: Supporting Children with Down syndrome in Primary School for Parents, Teachers, Special Needs Assistants and Professionals. Our Education Conferences take place on Saturday October 7th and Friday October 20th 2017. The … Continue reading

Children with Down syndrome being diagnosed and treated earlier thanks to world-first study by Irish researchers into arthritis

Twice as many children with Down syndrome have arthritis than previous estimates. Children with Down syndrome being diagnosed and treated earlier thanks to world-first study by Irish researchers into the disease. ***Clinical Research Fellow Dr Charlene Foley (pictured), Dr Orla … Continue reading

DSI says it is inspiring to see brands like Glenisk recognising the beauty in every child

Down Syndrome Ireland is delighted to see beautiful 17-month-old Abby Dillon from Cork, being announced as one of the new faces of Glenisk’s Organic No-Added-Sugar Baby Yogurts.  Abby was born with Down syndrome. Down Syndrome Ireland President Mary Doherty said: … Continue reading

Supporting Children with Down syndrome in Primary School

We are delighted to announce that we have produced a new booklet, Supporting Children with Down syndrome in Primary School. The vast majority of the booklet contains information that will be useful for your child’s teachers regardless of whether your … Continue reading

DSI reacts to the launch of new National Disability Inclusion Strategy 2017-2021

The new National Disability Inclusion Strategy 2017 – 2021 has been launched by the Government. In it, the Minister for Disabilities Finian McGrath states it is a “whole of Government approach to improving the lives of people with disabilities” – … Continue reading

Tom Duffy’s Circus to host a special sensory friendly performance for DSI

We are delighted to announce that Tom Duffy’s Circus will hold a sensory friendly performance at Alfie Byrne Rd, Clontarf, Dublin 3 on Friday 14th July at 4.30pm, with all proceeds going to Down Syndrome Ireland. This performance continues the … Continue reading

Down Syndrome Ireland announces the passing of Frank O’Sullivan

It is with great sadness that we share the news of the passing of Frank O’Sullivan. Frank had a long involvement with Down Syndrome Ireland, as a member of our Dublin Branch Committee for over 25 years, and also representing … Continue reading

Parents seek best options for School Leavers at DSI Conference

Our conference for parents of School Leavers was attended by over 30 parents on Saturday, May 30th in the Killeshin Hotel in Portlaoise and was facilitated by Pat Clarke, recently retired CEO of Down Syndrome Ireland. Speakers included Brian Miller, … Continue reading

Former CEO Pat Clarke elected as Vice-Chair of the European Disability Forum

Congratulations to former CEO of Down Syndrome Ireland Pat Clarke who was elected as Vice-Chair of the European Disability Forum at their AGM in Madrid at the weekend. The European Disability Forum is an independent NGO that represents the interests … Continue reading

Kevin Kilbane describes his experience as a Down Syndrome Ireland Volunteer Ambassador

To celebrate National Volunteer Week 2017, the Irish Independent released its ‘Volunteer Voices’ supplement celebrating volunteers across the country which featured former Irish International Kevin Kilbane describing his experience of being a volunteer Ambassador for Down Syndrome Ireland. ” I … Continue reading

Text FUNDAYS to 50300 to donate €4

As part of this year’s campaign, we have introduced Text FUNDAYS to 50300 to donate €4 to help increase our fundraising efforts. (Text cost €4. Down Syndrome Ireland will receive a minimum of €3.25. Service Provider: LIKE CHARITY. Helpline: 076 680 … Continue reading

Registration for DCA Medical Cards for all children is now open

We are delighted to announce that registration for the medical card for all children for whom the Domiciliary Care Allowance (DCA) is paid is now open (May 1st 2017). We urge all parents and guardians of eligible children who do … Continue reading

Government publishes Bill to provide children with disabilities with medical cards

After years of lobbying the Government to extend medical card provision for children with Down syndrome, DSI is delighted with the announcement that the Bill to provide children with disabilities, in receipt of Domiciliary Care Allowance with medical cards has … Continue reading

DSI National Council Meeting to take place on Saturday, May 13th

The next Down Syndrome Ireland National Council Meeting takes place on Saturday, May 13th in the National Support Office. As part of the meeting’s agenda, the new guidelines for schools on the use, organisation and deployment of additional teaching resources … Continue reading

The ‘Field of Dreams’ at Down Syndrome Cork

Down Syndrome Cork’s ‘Field of Dreams’ project will provide meaningful work and life skills development opportunities for adults with Down syndrome. The Field of Dreams will be located on the Munster Agriculture Society grounds at Curraheen, north of the N40. … Continue reading

IASLT calls for additional speech and language therapists for children with intellectual disabilities

A new paper published by the Irish Association of Speech and Language Therapists  – and one which Down Syndrome Ireland has been heavily involved in authoring – will strengthen parents’ positions when trying to access public speech and language therapies … Continue reading

DSI short-listed for prestigious AONTAS Star Award

The STAR Awards (Showcasing Teamwork, Awarding Recognition) are an awards initiative coordinated by AONTAS as part of the annual Adult Learners’ Festival to acknowledge the fantastic work undertaken by adult learning initiatives throughout Ireland. The awards celebrate the positive contribution … Continue reading

DSI’s Radio & TV Coverage of World Down Syndrome Day 2017

Down Syndrome Ireland had a very busy time in the media for World Down Syndrome Day 2017 with radio, television and print coverage. You can read, watch and listen to a number of the interviews below. PRINT Irish Independent 21 March … Continue reading

DSI attends Dail briefing on the ratification of the UNCRPD 30/3/17

Cian O’Connor, Chairperson of Down Syndrome Ireland’s National Advisory Council spoke at a Dail briefing on the ratification of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) yesterday. The briefing came ahead of the national protest … Continue reading

DSI joins 100 disability organisations to demand Government ratifies UNCRPD

Thursday 30th March 2017 marked ten years to the day since Ireland promised to fully adopt a key international agreement around disability rights.  This agreement; the UN Convention of the Rights of People with Disabilities (UNCRPD), ensures that people with … Continue reading

DSI welcomes Government announcement on DCA Medical Cards

The Government has announced that the Bill to provide children with disabilities, in receipt of Domiciliary Care Allowance, with medical cards has been published (2 March, 2017). The final step in the process is getting the legislation passed by members of … Continue reading

DSI honoured with a NALA Plain English Award at ceremony in Dublin

Down Syndrome Ireland has been honoured with a National Adult Literacy Agency (NALA)  Plain English Award. We were honoured as a Category Award Winner for creating accessible research tools for adults with Down syndrome at a ceremony on Thursday 9th … Continue reading

DSI thank PriceWaterhouseCoopers for their generous support.

  Down Syndrome Ireland want to sincerely thank the PricewaterhouseCoopers staff who recently raised €14,267 through their fundraising activities, in 2016. PwC also provided DSI with members of their own Intern Team who gave invaluable assistance and advice in organising … Continue reading

DSI Branch Officers attend first training & information session of 2017

  Last Saturday (28th January), our amazing volunteer Branch Officers attended the first in a series of regular training / information sessions at DSI’s national office in Dublin. Branch Officers from around the country attended to hear presentations on insurance … Continue reading

DSI launch updated Medical Management Guidelines for Children & Adults with Down syndrome

  We at Down Syndrome Ireland are delighted to formally launch the updated Medical Management Guidelines for Children and Adolescents with Down syndrome in Ireland. Down Syndrome Ireland has worked for many years alongside the Department of Paediatrics and Child Health, … Continue reading

DSI continues to ensure access to the best education possible for its adult members

  Down Syndrome Ireland’s Adult Education Team for the 2016/2017 academic year, attended professional development training at our national office this week. The training was led by Grainne de Paor, Down Syndrome Ireland’s Head of Adult Education and Projects Adult … Continue reading

DSI News: One of the biggest barriers to education for children with Down syndrome is being removed

One of the biggest barriers facing children with Down syndrome in education is finally being dismantled. The ‘soft’ barriers to enrolment that many parents of children with disabilities have faced have been removed with the announcement by the Minister for … Continue reading

Minister Bruton to implement new model for allocating resource teachers to schools

Department of Education & Skills Press Release Minister to implement new model for allocating resource teachers to schools, following policy advice from the NCSE and piloting of new model in 47 schools.  7.2% Increase in Resource Teachers – 900 extra … Continue reading

Down Syndrome Ireland unites with disability charities to call for ratification of critical convention

  Down Syndrome Ireland joined forces with a number of prominent disability charities this week to urge the Government to ratify the UN Convention on the Rights of Persons with Disabilities … Continue reading

Down Syndrome Ireland and Inclusion Ireland host Individualised Funding Seminar calling for Government to act as ‘a matter of urgency’

Down Syndrome Ireland and Inclusion Ireland have demanded that a proposed Government taskforce which will investigate giving people with disabilities access to their own funding be set up as ‘a matter of urgency’. The two organisations hosted a Individualised Funding Seminar at the Gibson Hotel, Point … Continue reading