Inclusion Ireland has published a research report on the parent experience of Progressing Disability Services for Children and young people.
Lack of services was the main issue that emerged from the research which saw responses from over 1000 families across Ireland.
The report reflects a survey we published recently which shows that 65% of respondents received zero Speech and Language therapy sessions last year. Speech and language therapy is vital for young children with Down syndrome.
This survey took place in the context of many services moving to the ‘Progressing Disabilities’ model, which is intended to streamline pathways and improve access to services, however, there is little public confidence that the intended outcome will be achieved.
We have real concerns about the effectiveness of the Progressing Disabilities policy in meeting the needs of children with Down syndrome and the current lack of access to appropriate levels of therapy.