To celebrate this year’s World Down Syndrome Day 2019 – Down Syndrome Ireland had a number of events taking place on the day and after. To commemorate the day DSI launched a new resource which challenges outdated ideas about Down syndrome and instead provides an insight into the realities of family life with a baby, child, teenager or adult with Down syndrome in Ireland today.
“…more than medical” was launched on World Down Syndrome Day (Thursday, March 21st 2019).
The booklet includes a combination of experiences from our family and adult members from around the country and will be distributed free-of-charge to our nationwide network of 25 branches, to maternity and children’s hospitals across the country and HSE Early Intervention Teams.
The booklet will be a resource for parents with a pre or postnatal diagnosis of Down syndrome for their baby. It will also be an essential tool for professionals and healthcare workers to ensure complete and balanced information is provided to all parents.
To complement the launch of “..more than medical” Down Syndrome Ireland launched a video for new parents – ‘Having a child with Down syndrome’.
Our fourth annual Purple Run took place once again in Dublin’s Phoenix Park on Sunday, March 24th – the event is our nationwide celebration of World Down Syndrome Day.
Like previous years, we had a wonderful day filled with fun, friendship and a bit of exercise for all the family – plus lots and lots of purple!
Purple Run 2019 was the biggest and best yet – with over 2,200 people taking part on the day, check out the amazing photos below.
Like to know more, you can watch this short documentary all about the Purple Run below.
Down Syndrome Ireland featured on national television, RTÉ 6 o’clock featured the launch of ‘..more than medical’ and a number of irish representatives from the Down syndrome community – watch the segment below.